Comm. Ave. Charity Classic

Tonight is the third annual Comm. Ave. Charity Classic hockey game between former players from Boston University and Boston College.  The event is held by Compassionate Care ALS and supports the Travis Roy Foundation  (BU) and the Pete Frates Fund (BC).  This exhibition game is quickly becoming my favorite charity event of the year. The […]

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Level of Neurofilaments in Cerebrospinal Fluid Could Confirm ALS Diagnosis, Study Reports

Measuring neurofilaments in brain and spinal fluid appears to be a reliable way of confirming an ALS diagnosis, Belgian and German researchers report. This finding is important because it takes an average of a year from the appearance of the first symptoms before doctors can diagnose the disease. The discovery could shorten this time. The neurons […]

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Researchers Identify New Gene Mutation Likely Involved in ALS Development

ALS News Today, May 18, 2017, written by Joana Fernandes, PHD. Mutations in the UBQLN4 gene may contribute to the development of amyotrophic lateral sclerosis (ALS), according to recent research. The study, “A novel ALS-associated variant in UBQLN4 regulates motor axon morphogenesis,” was published in the journal eLife. Over the years, researchers have identified numerous genes linked to […]

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